Tag: Spinal Muscular Atrophy Disease

Actor Sonu Sood Comes Forward Seeking Help For Kandhamal Child With Rare Genetic Disorder

Actor turned philanthropist Sonu Sood has come forward and sought help from fellow countrymen to donate whatever they can to treat one and a half year old Rajveer from Ambapada village in Kandhamal who is suffering from a rare genetic disorder.

Wednesday, 15 December 2021

Strangers Turn Angel: Rs 18 Cr Raised For Kerala Kid Through Crowdfunding For 'Wonder' US Drug

Half-year-old Kerala child Muhammed's sister Afrak who is 15 years old also suffers from the same disease. She is elated and thanked all those who came forward to help her young brother.

Monday, 05 July 2021

Benefiting Poor Not Some 'Damaad': FM Sitharaman's Jibe On Congress

Drug For Spinal Muscular Atrophy Disease Already Exempt From Import Duty: FM

New Delhi: Finance Minister Nirmala Sitharaman on Friday in Parliament said imported life-saving drugs including those for spinal muscular atrophy disease for personal use are exempted from basic customs duty but they attract five per cent GST. However, adhoc exemption from goods and services tax (GST) on imported life-saving drugs are given on a case-to-case […]