Tag: Rare Genetic Disorder

However, doctors at SCB said that the hospital does not have the required facility to treat the child. After being sent back by SCB authorities, the hapless parents are now desperately trying to arrange money for Zolgensma injection which is the only treatment available for their son's condition.

Even though the parents of the baby have been getting help from across the country but it is impossible for them to raise such a huge amount in such a short span of time. So, they have sought help from CM Naveen Patnaik for the treatment.

Unable to arrange such a hefty amount on our own, Rajveer’s parents have been running from pillar to post, trying to arrange the amount to avail the injection.

Bhubaneswar: In what could give a new lease of life to five-year-old Kanha from Ganjam district suffering from a rare disease of excess hair and flesh growth on his body, doctors diagnosing him today said that a recuperative surgery will be performed on his body. The development comes a day after OTV telecast the plight […]

Kendrapara: Life has been harsh for Anushka Das who is bedridden for the last one year. Once a talented dancer and meritorious student, Anuksha of Kendrapara is suffering from a rare neurological condition and her family is struggling to arrange funds for advance treatment. On getting information about the plight of girl, BJP national vice-president […]